The Big Open House
Last weekend, our family enjoyed going to the open house introducing the new building at Seattle Children't Hospital. They had all kinds of fun for the children and tours of the new building. The younger children brought their dolls in for the teddy bear clinic. They each got their own bag filled with supplies and got to use the "real" tools that doctors use.
And now it has. We are feeling the tension of being apart from one another, but we know this is what we have to do for now. I am home with the little people for the weekend, the older boys (minus Daniel) are at Boyscout camp and Naomi has taken my place in Seattle. Anna and Daniel must be extra cautious right now. It would be okay for Daniel to be home, if everyone is healthy, but Selah has a little cough so he must stay away. They will not be in church the next couple of weeks as we had hoped, but they will get to live stream the services. The days have been long and busy. I am weary, Craig is weary, Anna and Daniel are weary. Tomorrow holds just a few appointments and then there is a break until Monday. Anna will be admitted on April 2 to start her chemo. April 11 is still scheduled for her day of rest and it is Nathanael's 13th birthday. We asked Dr. Woolfrey if it would be okay to have all of our children (as long as they are healthy) come for a little party. She said her only requirement is that we give her a piece of the cake! And then, on the 12th, Daniel goes in for his bone marrow aspiration and Anna will have it put in her line. This is day 0. The 13th is day one and the count begins until day 100. By this time, hopefully her body will have adapted to the new marrow, and the marrow will have adapted to Anna's body. Then we will get to go home to Bremerton and the care of Dr. Irwin in Tacoma. But this does NOT mean that life will be back to normal. In fact, life won't be "normal" for about a year. Anna will not be allowed to be around large groups of people until life is considered normal....after the first year if all goes well. Next week holds more appointments and classes, but only until Thursday, then Anna should get a nice rest for five days before her hospital stay.