Anna's bone density scan was amazingly normal! This is very abnormal for someone who has undergone a bone marrow transplant. The doctors said they all jumped for joy at seeing these results. Her lung capacity is actually a tad bit better than before her transplant. I felt sorry for her undergoing the respiratory tests! Wow! As I watched, I would suddenly realize I was taking the breaths or exhaling as she was doing!
The bone marrow aspiration went well, leaving Anna very sore for several days. The results of the test reveals that Anna has 0.01% cancer left. Last time she was at 0.03%. This means that out of 1000 cells, there was 1 cell that had the BCR-ABL (or Philedelphia) chromosome. At 0.03, there were 3 cells in a thousand. The doctors are still very optimistic as there has been a decline. There is no need of worry at this point. It is at the six month aspirate that will determine whether Anna is at risk of getting CML again and if further treatment is needed.
We were given a call from the nurse on the green team at SCCA to tell us that Anna can stop taking three medicines! Yay! Also, we have gotten to decrease the insulin intake as Anna's blood sugar numbers have gotten a lot better. She is now completely off of the prednisone which can cause a drug induced diabetes as well as possibly cause type 1 diabetes that stays with her forever. We are thinking it has just been the drug induced kind.
I think Selah enjoyed getting to go with us to the appointments for once. She definitely had fun being the center of attention for the time, though she thoroughly missed the family. The first morning, she woke up with, "Where's my Daddy?!" The days to follow, she would ask where her (insert sibling's name) is.
We missed getting to go to our annual family camp. We missed the family. But we enjoyed time together. We didn't do anything spectacular, we just hung out. We kept the house clean, went to appointments, and rested when we could. We even had an interesting adventure of sorts.....but I'll post on that later!
|Selah watching for daddy and the kids|